CDKL5 is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neuro-developmental impairment. It is a rare orphan disorder to which there are currently about 600 children diagnosed in the world. Scientists and doctors do not know what causes CDKL5 mutations, or the full spectrum of the disorder. With continued research and awareness of CDKL5, the International Foundation for CDKL5 Research hopes to build a more comprehensive understanding of the spectrum of this disorder and begin the search for a desperately needed cure.
For each CDKL-5 bracelet purchased, $5 is donated to this partner organization. Help support the efforts of the IFCR and their mission to "Hope, Love, Cure" those children affected by this genetic disorder by purchasing your HopeLoveCure bracelet today!
Features: Hand painted by local Ghanaian artisans
Material: Recycled glass
Imported: Made in Ghana
Special Notes: Available with the white filler bead or without, as seen in the product images. Please choose your desired style before checkout
Your order will be packaged with our environmental impact in mind. If you would prefer any items to be grouped together or packaged individually please specify in a note below.
xo The Bead Team